Friday, July 31, 2009

A Cut Above the Rest

Here is Liam holding his own bottle! He is so advanced! ;D


Poor little Liam had his circumcision on Tuesday. He had a rough day but now he is all better, and still laughing enjoy the video!

Wednesday, July 22, 2009

Doctors Appointment


So we just got back from the doctors office. Liam's surgery is scheduled for August 17th (a day before Pat's birthday). Here is more about a Dermal Sinus Tract. This is copied directly from Primary Children's Website.

Dermal sinus tract is a small dimple-like opening in the midline of the spine that may connect deep into the spinal cord. The majority of dermal sinus tracts are located at the level of the sacrum or the lumbar region. The drawing on the right illustrates such a condition. Since these tracts may be openings that communicate with the contents of the spinal canal there is the possibility of meningitis developing. The dermal sinus attaches to the end of the spinal cord, causing tethering. The surgery is to remove any portions of the sinus tract that go into the spinal canal and to disconnect the sinus tract from the spinal cord, thus untethering it.

We did find out that there is no hole in the skin, allowing air and other contaminates getting into the spinal cord. This is good news, as it means that there is a VERY low risk for Meningitis.

The surgery will take 4-5 hours and he will be in the hospital for around 5 days after the surgery. Once he has the surgery he will not need another surgery ever. He will be perfectly fine. Let me know if you have any questions. Thank you for prayers and concern!!

Tuesday, July 21, 2009

Unvailing of Events

I don't know where to start. First I would like to say thank you to every one that has shown support and has sent us their prayers. I guess the next thing is to say is that I was laid off from my job recently. Next is that Liam has whats called Dermal Sinus Tract, he will have to have surgery soon. We will have more information as to when the surgery is going to be. I took this video today, Liam is one smart cookie!!!!


Again thank you for all of your love and support.

Tuesday, July 14, 2009

An Update

Well we are 3 days away from his MRI. We are a little nervous but, I think the hardest part is going to watch them put him under. Since he is so little they have to put him under so that he doesn't move. On a little bit of a happier note, Harry Potter comes out tonight! YAAY! We are hoping that we will make it to a showing on Friday after Liam's MRI. It depends on how long it is going to take. Anyway, we will have the MRI on Friday and have more information on the following Tuesday. Here are two cute pictures.

Saturday, July 4, 2009

Happy 4th of July!


So we made it up to Seattle! YAAY! Liam did really good. But by the end he was so ready to be out of his car seat. The ride from SLC to Bosie was very short. Liam slept the whole way there and we had fun talking. We arrived at Aunt Cheryl's house right at 9:00 we chatted for a while with Grandma D and Aunt Cheryl. Liam didn't sleep very good. He kept waking up. Finally when he woke up around 4 we decided that we could head out. The leg of the trip was extremely long! Liam wasn't as tired and kept fussing. But I would be to if I was forced to sit in a confined area for a long time. We arrived home at 3. We actually got to go see a movie last night. Liam's first movie. It was Transformers 2. It was pretty good. I think that all the movie was about was explosions. I would say the story line was a little weak. But the explosions were fantastic I have to say. Any way we took this picture this morning. He is such a fantastic baby!

Tuesday, June 23, 2009

Liam's Doctors Appointment


Not everyone knows but Liam has a dimple on his back that may be a form of Spina Bifida. We decided not to tell anyone but family until this point because we hadn't talked to the doctors yet. We have finally been to the specialist. The doctors think that he may have Spina Bifida Occulta. There are 15% of people in this world that have Spina Bifida Occulta and either never know it or have no side effects. The doctor believes that Liam is within this 15%. He said that he is 99% sure that Liam with have no ramifications from his "cigarette burn" (Yes, that is the technical term because that's is what it looks like). But just to be on the safe side he has still ordered an MRI. It will be on July 17th and the results on the 22nd. The doctor is concerned for two things. That there may be a pin prick hole in the dimple that would give direct access to his spine. This could result in Meningitis. Bad bad bad! The other concern is that when he was a fetus his spinal cord developed around cartilage. Which could cause pressure and stretch his spine. These are the things he is going to be checking for. We are all very hopeful, with the knowledge that he is a good doctor and he will take care of Liam no matter what the diagnoses is. This can be taken care of surgically no matter which it is. But we are hopefull that he falls within the 15% of people world wide with no side effects. Keep Liam in your prayers. Thanks!

Thursday, May 28, 2009

10 Things I have learned

Here are 10 things I have learned about Liam:
  1. He likes to have his feet rubbed
  2. He loves his pacifier
  3. He is getting better about changing his clothes and diapers
  4. He loves it when you brush his hair
  5. He loves to cuddle with Me Patrick or Grandma
  6. He coo's in his sleep (I have mistaken this for being fussy at night)
  7. He LOVES kisses!
  8. His back is very ticklish
  9. He likes to have his hands by his face
  10. He loves to be swaddled